Creating Scientific Theories with Online Communities using Gut Instinct

People's lived experiences provide intuitions about their health. Can they transform these personal intuitions into scientific theories that inform both science and their lives? My research introduces social computing architectures and system principles for people to brainstorm and test causal scientific theories. These ideas are instantiated in the Gut Instinct system (gutinstinct.ucsd.edu). 344 voluntary online participants from 27 countries created 399 personally-relevant questions about the human microbiome, 75 (19%) of which microbiome experts found potentially scientifically novel. To test their theories, end users design structurally-sound experiments, improve them via community reviews, and run them with other participants. Controlled experiments show that participants create better hypotheses and experimental designs when they have access to procedural training. My research illustrates a novel way to tackle complex, creative tasks online by building expertise in online volunteer communities.

Civic, Citizen and Grassroots Science: Towards a Transformative Scientific Research Model | Request PDF

Request PDF | On Jan 1, 2013, Jessica McCallum Breen and others published Civic, Citizen and Grassroots Science: Towards a Transformative Scientific Research Model | Find, read and cite all the research you need on ResearchGate

Empowering science communities with open, democratic, researcher-owned infrastructure.

We’re building communities and tech for publishing, curating, sharing, and discussing research online using ATProto and other decentralized protocols.

Empowering science communities with open, democratic, researcher-owned infrastructure.

We’re building communities and tech for publishing, curating, sharing, and discussing research online using ATProto and other decentralized protocols.

Crowdsourced Health Research Studies: An Important Emerging Complement to Clinical Trials in the Public Health Research Ecosystem

Background: Crowdsourced health research studies are the nexus of three contemporary trends: 1) citizen science (non-professionally trained individuals conducting science-related activities); 2) crowdsourcing (use of web-based technologies to recruit project participants); and 3) medicine 2.0 / health 2.0 (active participation of individuals in their health care particularly using web 2.0 technologies). Crowdsourced health research studies have arisen as a natural extension of the activities of health social networks (online health interest communities), and can be researcher-organized or participant-organized. In the last few years, professional researchers have been crowdsourcing cohorts from health social networks for the conduct of traditional studies. Participants have also begun to organize their own research studies through health social networks and health collaboration communities created especially for the purpose of self-experimentation and the investigation of health-related concerns. Objective: The objective of this analysis is to undertake a comprehensive narrative review of crowdsourced health research studies. This review will assess the status, impact, and prospects of crowdsourced health research studies. Methods: Crowdsourced health research studies were identified through a search of literature published from 2000 to 2011 and informal interviews conducted 2008-2011. Keyword terms related to crowdsourcing were sought in Medline/PubMed. Papers that presented results from human health studies that included crowdsourced populations were selected for inclusion. Crowdsourced health research studies not published in the scientific literature were identified by attending industry conferences and events, interviewing attendees, and reviewing related websites. Results: Participatory health is a growing area with individuals using health social networks, crowdsourced studies, smartphone health applications, and personal health records to achieve positive outcomes for a variety of health conditions. PatientsLikeMe and 23andMe are the leading operators of researcher-organized, crowdsourced health research studies. These operators have published findings in the areas of disease research, drug response, user experience in crowdsourced studies, and genetic association. Quantified Self, Genomera, and DIYgenomics are communities of participant-organized health research studies where individuals conduct self-experimentation and group studies. Crowdsourced health research studies have a diversity of intended outcomes and levels of scientific rigor. Conclusions: Participatory health initiatives are becoming part of the public health ecosystem and their rapid growth is facilitated by Internet and social networking influences. Large-scale parameter-stratified cohorts have potential to facilitate a next-generation understanding of disease and drug response. Not only is the large size of crowdsourced cohorts an asset to medical discovery, too is the near-immediate speed at which medical findings might be tested and applied. Participatory health initiatives are expanding the scope of medicine from a traditional focus on disease cure to a personalized preventive approach. Crowdsourced health research studies are a promising complement and extension to traditional clinical trials as a model for the conduct of health research.

How and When to Involve Crowds in Scientific Research - The Book

This book explores how millions of people can significantly contribute to scientific research. Discover main elements, authors, and who this book is for and why.

Connecting Research with Community - Civic Innovation Lab

Welcome to Civic Innovation Lab, where we drive social impact through collaborative solutions and empower communities. Join us in fostering sustainable development, co-creating initiatives, and advancing inclusive governance for a better future.

OpenAI launches AI model GPT-Rosalind for life sciences research

OpenAI on Thursday introduced an artificial intelligence model touting increased biology knowledge and scientific research capabilities, ​as the startup deepens its push into the ‌life sciences field.

Semble

A social knowledge tool for research trails, built on ATProto

What’s the “R0” of a New Community Idea or Behavior?

What if the real test of a community idea isn’t whether people engage with it, but whether they pass it on?

modular research preprint server demo with meaningful social context

a concept preprint server demonstrating what kinds of features would be possible in the future with more modular research publishing and an open social protocol to layer in the public discourse in meaningful ways.