Why Do We Call It Participatory Science? | Smithsonian Environmental Research Center

Civic, Citizen and Grassroots Science: Towards a Transformative Scientific Research Model | Request PDF

Request PDF | On Jan 1, 2013, Jessica McCallum Breen and others published Civic, Citizen and Grassroots Science: Towards a Transformative Scientific Research Model | Find, read and cite all the research you need on ResearchGate

How can citizen science reduce psychological distance to science? Insights from three projects in contested environmental contexts

Citizen science (CS) is a participatory mode of knowledge production, enabling non-scientific actors to contribute to and sometimes contest scientific agendas and interpretations, making it a way to bridge science and society. This paper examines how that potential unfolds by analysing the individual perspectives of citizen scientists through the lens of Psychological Distance to Science (PSYDISC). Drawing on three case studies of contested environmental CS, we identify which contextual aspects of CS shape citizen scientists' experiences of social, spatial, temporal, or hypothetical distance to relevant science, and how these experiences may relate to trust. Our findings underscore the role of science communication as both a channel for dissemination, and as a constitutive element of participatory research; crucial for reducing psychological distance and enabling socially robust knowledge production, especially in contested, policy-relevant science settings.

Nova Scotia’s Experiment in Research That Solves Real Problems

Locally focused research investments enable coalitions of scientists and citizens to serve community needs.

Nova Scotia’s Experiment in Research That Solves Real Problems

Locally focused research investments enable coalitions of scientists and citizens to serve community needs.

How and When to Involve Crowds in Scientific Research - The Book

This book explores how millions of people can significantly contribute to scientific research. Discover main elements, authors, and who this book is for and why.

Citizen involvement in research on technological innovations for health, care or well-being: a scoping review

Citizen science can be a powerful approach to foster the successful implementation of technological innovations in health, care or well-being. Involving experience experts as co-researchers or co-designers of technological innovations facilitates mutual learning, community building, and empowerment. By utilizing the expert knowledge of the intended users, innovations have a better chance to get adopted and solve complex health-related problems. As citizen science is still a relatively new practice for health and well-being, little is known about effective methods and guidelines for successful collaboration. This scoping review aims to provide insight in (1) the levels of citizen involvement in current research on technological innovations for health, care or well-being, (2) the used participatory methodologies, and (3) lesson’s learned by the researchers., A scoping review was conducted and reported in accordance with the PRISMA-ScR guidelines. The search was performed in SCOPUS in January 2021 and included peer-reviewed journal and conference papers published between 2016 and 2020. The final selection (N = 83) was limited to empirical studies that had a clear focus on technological innovations for health, care or well-being and involved citizens at the level of collaboration or higher. Our results show a growing interest in citizens science as an inclusive research approach. Citizens are predominantly involved in the design phase of innovations and less in the preparation, data-analyses or reporting phase. Eight records had citizens in the lead in one of the research phases., Researcher use different terms to describe their methodological approach including participatory design, co-design, community based participatory research, co-creation, public and patient involvement, partcipatory action research, user-centred design and citizen science. Our selection of cases shows that succesful citizen science projects develop a structural and longitudinal partnership with their collaborators, use a situated and adaptive research approach, and have researchers that are willing to abandon traditional power dynamics and engage in a mutual learning experience.

Connecting Research with Community - Civic Innovation Lab

Welcome to Civic Innovation Lab, where we drive social impact through collaborative solutions and empower communities. Join us in fostering sustainable development, co-creating initiatives, and advancing inclusive governance for a better future.

Crowdsourced Health Research Studies: An Important Emerging Complement to Clinical Trials in the Public Health Research Ecosystem

Background: Crowdsourced health research studies are the nexus of three contemporary trends: 1) citizen science (non-professionally trained individuals conducting science-related activities); 2) crowdsourcing (use of web-based technologies to recruit project participants); and 3) medicine 2.0 / health 2.0 (active participation of individuals in their health care particularly using web 2.0 technologies). Crowdsourced health research studies have arisen as a natural extension of the activities of health social networks (online health interest communities), and can be researcher-organized or participant-organized. In the last few years, professional researchers have been crowdsourcing cohorts from health social networks for the conduct of traditional studies. Participants have also begun to organize their own research studies through health social networks and health collaboration communities created especially for the purpose of self-experimentation and the investigation of health-related concerns. Objective: The objective of this analysis is to undertake a comprehensive narrative review of crowdsourced health research studies. This review will assess the status, impact, and prospects of crowdsourced health research studies. Methods: Crowdsourced health research studies were identified through a search of literature published from 2000 to 2011 and informal interviews conducted 2008-2011. Keyword terms related to crowdsourcing were sought in Medline/PubMed. Papers that presented results from human health studies that included crowdsourced populations were selected for inclusion. Crowdsourced health research studies not published in the scientific literature were identified by attending industry conferences and events, interviewing attendees, and reviewing related websites. Results: Participatory health is a growing area with individuals using health social networks, crowdsourced studies, smartphone health applications, and personal health records to achieve positive outcomes for a variety of health conditions. PatientsLikeMe and 23andMe are the leading operators of researcher-organized, crowdsourced health research studies. These operators have published findings in the areas of disease research, drug response, user experience in crowdsourced studies, and genetic association. Quantified Self, Genomera, and DIYgenomics are communities of participant-organized health research studies where individuals conduct self-experimentation and group studies. Crowdsourced health research studies have a diversity of intended outcomes and levels of scientific rigor. Conclusions: Participatory health initiatives are becoming part of the public health ecosystem and their rapid growth is facilitated by Internet and social networking influences. Large-scale parameter-stratified cohorts have potential to facilitate a next-generation understanding of disease and drug response. Not only is the large size of crowdsourced cohorts an asset to medical discovery, too is the near-immediate speed at which medical findings might be tested and applied. Participatory health initiatives are expanding the scope of medicine from a traditional focus on disease cure to a personalized preventive approach. Crowdsourced health research studies are a promising complement and extension to traditional clinical trials as a model for the conduct of health research.

Peer Production in Citizen Science: A Community-Centered Approach on the Example of Personal Science

Citizen science encompasses a wide range of practices where online collaboration for knowledge production plays a significant role. However, the study of forms of online collaboration other than crowdsourcing in citizen science has remained largely unexplored. This thesis aims to fill this gap by investigating peer production as a form of collaboration in online citizen science communities of practice. First, peer production theory was operationalized as a working model and used to analyze collaboration in citizen science case studies. This was followed by a comprehensive participatory design process for a specific use case involving the personal science community of practice. This process resulted in the creation of the “Personal Science Wiki”, an online space for consolidating community knowledge through peer production. Subsequently, a usability and card sorting study identified and resolved issues with the wiki implementation, and provided insights into mental models and content requirements regarding self-research knowledge. The lessons learned from the participatory design process were generalized as process recommendations for designing peer production solutions and knowledge management systems with communities of practice.

Citizen science in environmental and ecological sciences

Citizen science is an increasingly acknowledged approach applied in many scientific domains, and particularly within the environmental and ecological sciences, in which non-professional participants contribute to data collection to advance scientific research. We present contributory citizen science as a valuable method to scientists and practitioners within the environmental and ecological sciences, focusing on the full life cycle of citizen science practice, from design to implementation, evaluation and data management. We highlight key issues in citizen science and how to address them, such as participant engagement and retention, data quality assurance and bias correction, as well as ethical considerations regarding data sharing. We also provide a range of examples to illustrate the diversity of applications, from biodiversity research and land cover assessment to forest health monitoring and marine pollution. The aspects of reproducibility and data sharing are considered, placing citizen science within an encompassing open science perspective. Finally, we discuss its limitations and challenges and present an outlook for the application of citizen science in multiple science domains.

ParticipatoryEcosystem

ParticipatoryEcosystem : Public website for ParticipatoryEcosystem.com

iNaturalist accelerates biodiversity research

Abstract. Participatory citizen science is expanding, with iNaturalist emerging as one of the most widely used platforms globally. However, its application